Nothing eventful came out of this appointment. We went over the history of my disease. Next the Radiologists at MDA Houston will review the Radiology Reports and Films and provide their own opinion of the films. The GYN group in Houston will then review my case in next Tuesdays meeting. Dr. Ramirez will call me after the meeting to let me know what their recommendations are.
At this point, I am still researching the clinical trials provided to me by Dr. Shah from MDA in Orlando. MDA Houston will only be able to offer clinical trials that are being chaired at their facility. They do not have access to all of the clinical trials in the NCI database as I was originally led to believe. So basically, I need to decide which clinical trial is best for me or whether to go with the standard treatment of therapy for recurrent cervical cancer which is Topotecan.
I'm not schedule to go back to Orlando until Thursday night, but I am going to try to get home earlier if I can.
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6 comments:
Can the doctors there have other facilities do a search for matches in your condition, or do you have to go to each of them in person?
Once you have access to the clinical trials on the NCI database, how quickly can you begin them. Is there a protocol in place stating screening prior to clinical trial? Will the current records you have be of use for the next clinical trial? I'm sorry over your disappointment regarding the flow of information. You are a strong, inspiring woman and I know you'll find out all the information you need. Come home soon!
If you tell us where and what to look for - maybe we all can help you sift through the various trials and at least minimize the search for you on a matching trial?
Hey Robin, Please do not give up your search. Why don't you come to Toronto to look into the trials you had found here. I will take the time off to be with you and help you. You are such an inspiration to all of us, we are all behind you 100%
Love you
LiseAnne
Robin, I'm confident that something good has to come from all this extensive search! I've been praying for you and the doctors treating you that God may enlighten them and give them the right answer for you! I just left you a voicemail. call me when you have the opportunity. God Bless!
I would have to go to each facility to verify if I qualify. I have been making lots of phone calls though and ruled out many.
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