A small set back today. My hemoglobin was very low today, 7.5 as well as my platelette counts, 73. I need a blood transfusion. However, there were no rooms available for the rest of the year. So, I will be admitted tomorrow to MD Anderson Hospital for the blood transfusion. I'll probably spend the whole day there, but I will be able to come home at some point. Lovely way to spend my holiday, isn't it? The set back is disappointing, because they will not attempt to give me the Topetecan before my next scheduled appointment which is next Wednesday. This just delays the entire process and gives the disease more time to grow, but I am trying to stay positive (although it's getting harder to find any positive points of view in this ordeal).
My pain has also escalated dramatically to the point that I can't get more than two hours of sleep at a time. My meds were upped considerable today, so hopefully I will be able to get some sleep. Still planning on spending New Year's Eve at the Ritz. They can't take that away from me (at least I hope not).
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3 comments:
Oh, Robin, you and your family are in our prayers. I am child-free tomorrow (29) and Saturday (30) Please call if you need anything, even if it's just company. I wish I could make it all go away for you!
Robin,
I have been following your blog daily and am sorry to hear of your struggles. I am glad you are trying to stay positive; I truly believe that miracles can and do happen every single day. I am praying that your case will be one of them. Please let me know if there’s anything I can do to help you or your family. God bless you!
Karen T
Robin, I'm real sorry about this setback and hope that the transfusion went okay yesterday. Man, they have got to do something to help you with the pain, you need your sleep, not to mention the way that being in pain can make one so depressed (or at least it does me). Keep at them about it, there has got to be something that will work for you. Have you tried sleeping upright or propping pillows or something like that? Maybe it would help a little.
Lots of hugs, Michele
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