Thursday I got MD Anderson for a regular month PAP smear which turns out normal as usual. However, I have a message waiting for me from Dr. Shah regarding my liver enzymes from the day before. It turns out that my bilirubin is extremely high (0.4-2.0 )is normal. Mine was 19. My eyes were yellow, and again they give me the Hospice talk. Dr. Shah wants me to have an ultra sound to see if I have a liver obstruction to explain the high bilirubin. If not, they are not sure what is next for me. I have the sona gram but it is inconclusive. So they schedule me to be admitted to have Radiology take a look. If they find the obstruction, they will need to plant a stent to redirect the bile to the right place. That afternoon I went to the mall for the first time this calendar year to buy Alyssa birthday present and myself an outfit for the party. I had lunch at Harvey with Lourdes and Mayra. I'm the best I have felt in a long time. However, once I get home reality sets in and it's time to go to the hospital. Lourdes and Mayra take me. we get there after 6:30pm, so naturally radiology has home and there is nothing they can do for me this evening. They claim to have been waiting for me since 1pm, yet we didn't get the call at home until almost 5pm.
Dr. Sunshine greets me and tell me all the things that could go wrong and wants me to have another CT scan. The can takes place around 11pm and of course does not go smooth at all that day. They couldn't get an IV in me for nothing. Finally they realize that I have a power port which can be uses for CT scans. Not that easy though because that requires changing the port needle 3 times. The same port needle which had already been changed twice that day. Nothing was going good for me that day. To this day no one has even given me the results of that CT scan, so it must not have been that vital.
My friend Lourdes and Mayra spend a night at a bed and breakfast for friends and family of hospital patients. They say it was very descent for $40. The only hotel in downtown Orlando that night was $260.
Tomorrow is a long long day for me.
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2 comments:
Good to see you back online Robin, I've been checking and checking for reports. I'm anxious to hear the rest of what has happened to you this month.
LOTS of HUGS,
Michele T.
Hi Robin. Just checking in to say 'hello'. Still sending you lots of positive energy and prayers your way. -Steve Y.
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