Lots of folks know different levels details. I'm doing a high level recap and then slow but surely may go back to other specific entries which may require a history for myself (like when is the last time I took Topotecan vs Avastin Vs Aranesp.
Thank you for all your thoughts, prayers and concerns. It's been rough. Finally I got online today to try to get the blog site going again. In summary, I had found out that the 6 weeks of RAD to the pera aorta that ended in August 2006 did not quite do the trick as I had mets to the liver (3 nodules) and some lymp node involvement around the pancreas found in Nov 2006 scans. I went for a 2nd opinion to MDA Houston. Nothing came out of that. Decided to stay home with MD in Orlando starting a 6 month Topotecan/Avastin therapy. The Topetecan dosage has had to reduced at least twice, and I am rarely ever to get the three in a row they would like to see, before taking a one week break. My hemoglobin is quite low hanging around 92. My platelettes tends to plummet with the Topetecan which causes them to hold the treatment off. I also had several blood transfusions in January. Actually, I have spent a lot of time in the hospital this year. The most significant event that has occurred however is that my liver began to fail drastically (bilirubin = 19 should be between 0.2-2.0). They found an obstruction and built me an external stent. Very uncomfortably in many ways. Have had to have it changed twice due to excess leaking at the skin. Added an ostomy to that twice this week. Still on trial and error to find what works best. I'm immobile. I've been vomiting and have lost 20 bolds in 3 weeks. Finally today however I have actually put some food in my tummy and feeling a little bit better. Still a whole new life in which I feel I am riding backwards, as I do not have any idea as to what is next. I've got through end of April for the treatments, then I guess we will take it from there!!!
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